This topic is very important to me. Please help us help others to become aware that just because our health issues aren’t obvious, doesn’t mean they aren’t just as valid as someone with visible chronic health issues.
Once again, it is time to shine awareness on living with Invisible Illness. Invisible Illness Awareness Week is September 9 – 15 this year. So many people live with conditions that are invisible to the average bystander and suffer for it. They don’t suffer from just the medical condition itself, which probably brings more than enough difficulty and challenges, but they suffer from the ignorance of the people who have no idea that their reactions and comments have a serious impact on the ill person.
EDS is just one of many invisible illnesses and, as many EDSers will agree, it is far too easy to be classified as an attention seeker, a hypochondriac, or a loon; as lazy, crazy and a drug seeker just because the symptoms cannot be seen. To have such a vital and basic part of yourself labeled as nuts is as painful as any physical part…
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