Time to Talk about Health.

So. I have some followers now and I’ve posted on various topics. I recently started vlogging. I keep waiting for the right time to write about my health conditions, but that moment never seems to arrive. I’m just going to start on it now because I feel like if I don’t, I’m not ever going to do it.
I don’t know why this is so difficult for me, writing about  my health. Maybe because WordPress is a place I enjoy and go to get my mind off of my health problems? Probably so. But I really think it’s a necessary evil to do this because I want to find other people who have the same conditions. In this post I will talk about the worst (in my opinion) first.

I have Chiari Malformation and Syringomyelia. Technically these are two separate conditions, but one caused the other so I generally group them together.
Chiari Malformation is a condition that I have had since birth. (It’s like this for anyone. Either you are born with it or you’re not. This is not something that can just happen to someone randomly). Only, I didn’t know I had it until 2009. I was 29 when an MRI found the syrinx in my spinal cord, hence how I found out I have Chiari Malformation.

What are these two strange and hard to pronounce conditions, you are wondering. (Unless you suffer from one or both, or know someone else who does).

Chiari Malformation is a condition where the brain does not have enough room in the bottom part of the skull, so it is pushed downward through the opening that allows the spinal cord/spine to connect to the brain/cranium. (I’m trying not to use too many medical terms because you will probably be even more confused). Another reason I hate talking about this is because it’s so hard for me to describe.
Anyway, in my case, my brain was being forced down so much that it was putting pressure on my spinal cord, which caused the syrinx. A syrinx is a hole in the spinal cord that becomes filled with spinal fluid. The spinal fluid is supposed to surround the spinal cord to act as a sort of cushion to protect it. So my brain caused my spinal cord to start taking in fluid because the fluid had no where else to go since it couldn’t flow freely due to the bottom part of my brain being in the way.

There’s more to it, obviously but you get the idea. Three weeks after I found out about the Syrinx, I was having brain surgery. The surgery I had is called Posterior Fossa Decompression with Duraplasty and Laminectomy. More strange words that are confusing.

Basically, the neurosurgeon and his team opened the back of my neck all the way up to the crown of my head, took a piece of my skull away, cut part of C-1 and C-2 sections of my spine (neck), opened the Dura (protective sac that surrounds the brain), patched a piece of synthetic dura in to enlarge it, left the section of my skull out and stapled my head back together. I made this sound much simpler than it was also, but you get the idea.

I was in ICU for 3 days, in the hospital for around a week. The time after the surgery in ICU was the most horrible thing I have ever experienced. The pain was 10 times worse than the word excruciating can even come close to describing.

After I had been home recovering for about 6 weeks, I began having horrible headaches. I will give details if anyone wants them in a different post, just comment, but I ended up having Chemical Meningitis and THEN another brain surgery. That time I was stuck in the hospital for about a month.

I think that’s all I’m going to reveal for now, but please let me know if you want me to elaborate on anything. If you have or know of these conditions, please comment. Nobody understands what I have gone/am going through because I don’t know anyone else who has.

If you would like to know more of my story or have questions please feel free to ask. I don’t mind telling in detail, I just don’t want to get too specific if no one is going to read or get anything out of it.

Hope you are all well. Kat

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About Eli's Mommy

I am a mother and a kitty cat lover. I'm a little girlie and a lot geeky. I would do anything in the world for my children. I've been described with many words, ranging from compassionate to mysterious. I suppose I am a complex person, an old soul from my birth. There is a depth to me that no one has ever come close to experiencing, and probably never will. I wanted so much to become a nurse. I've always wanted to help others. Unfortunately, my life took a very different path. I have a lot of health issues which have left me disabled. That won't stop me from helping other people whenever and however possible. Please, please follow me. You won't be disappointed, I promise! View all posts by Eli's Mommy

11 responses to “Time to Talk about Health.

  • nevercontrary

    That sounds awful. I hope your health takes a good turn this year!

  • suite7beautytalk

    Great of you to share your story. Even if it helps one person, it could help them in ways you’ll never know. Hope you’re having a good week!

    • addercatter

      Thank you. It’s been rainy and cold, making my joints hurt worse and I just feel blah. Tomorrow is another day though. One good thing happened today! I got the new Nearly Naked foundation! Can’t wait to try it!

  • suaaddartistry

    Wow Kat, that is hectic *big hug* props to you for sharing such an excruciatingly painful time of your life with us, gosh. I have fibromyalgia (coupled with a newfound anxiety disorder) and that is painful in itself but wow girl, you’re a trouper. Good luck with your health and may The Almighty help you through troubled times. mwa

    • addercatter

      Thank you. Fibromyalgia on its on is very difficult to live with. I know what you go through 😦 I hope it gets better for you. Maybe there will be better treatment options in the future for us.

      Maybe I should write about my Fibromyalgia experiences next time I do a blog on my health. Thank you for reading.

      • suaaddartistry

        wow, you have experience with fibro as well? Yeah, it sucks, I had a flair up 2 days ago and my meds made me feel like a zombie 😦 It was more the anxiety attack I had thought that caused the flair up but thank The Almighty, i’m up and about today. PLEASE do write a post about your experience with fibro, I’m interested to know how it’s been for you.

      • addercatter

        I have both of those conditions, as well as others. I think I mentioned them on my ‘About Me’ page, but I haven’t gone into detail yet.
        I was unsure of which direction my blog was going to go but now I’m considering doing one blog for health conditions and a seperate one for makeup and beauty. That way the followers who want makeup blogs don’t get a bunch of boring health stuff and vice versa. What do you think?

      • suaaddartistry

        That’s a good idea, athough health and beauty do go hand in hand but I think because you’ll be discussing more serious health concerns as opposed to eating 5 fruit and veg a day it would be better to keep 2 separate blogs and you can always link back to each other 🙂 Perhaps later down the line, you’ll see that it was best to have 2 blogs or join them up again 🙂

      • addercatter

        Thank you for your opinion 🙂 sigh. Now to think of a name. I don’t have a LOT of followers yet, so I suppose the sooner I do it the better. I have a little under 40 followers I think, the last time I looked.
        Maybe I can post the health posts on both blogs for a bit, just to go through the transition process so the followers I already have can see what the new blog’s contents will be like. Yes?

      • suaaddartistry

        Yes, that’s a good idea. Slow but steady wins the race 😉

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